Resources Links

American Association of the Deafblind

American Association of the Deafblind (AADB) is a national consumer advocacy organization for people who have combined hearing and vision impairments. It is open to all persons who are deafblind and individuals directly concerned with their well being, including spouses, children, friends and health professionals. AADB provides technical assistance to persons who are deafblind, families, educators, and service providers through direct onsite assistance to consumers at the adult level in the subject areas of community living, curriculum, social skills, and technology.
Annual Dues: $20.00
TTY Phone: (301) 495-4402
Voice Phone: (301) 495-4403
Fax: (301) 495-4404

American Foundation for the Blind (AFB)

AFB’s mission is to enable people who are blind or visually impaired to achieve equality of access and opportunity that will ensure freedom of choice in their lives. AFB accomplishes this mission through agency-wide program initiatives and through the delivery of a wide variety of products and services.
Phone: (800) 232-5463

DB—LINK

National information network on deafblindness that provides information and resources on a wide range of topics. Just call and request the information you need. This network also provides a range of publications which are available on request such as:

• Overview on Deaf-Blindness
• Communication Interactions: It Takes Two
• Receptive Communication How Children Understand Your Messages to Them
• Expressive Communication How Children Send Their Message to You
• Recreation and Leisure
• Psychological Evaluation of Children who are Deaf-Blind: An Overview with Recommendations for Practice
• Early Interactions with Children who are Deaf-Blind
• DB-LINK Family Resource Directory
• Guidelines for Working and Playing with Deaf-Blind People
• Deaf-Blind Perspectives

Phone: (800) 438-9376
TTY Phone: (800) 854-7013

Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC)

This national organization provides advocacy, assessment, consultation, community education, family support, professional training workshops, information, referral, and support groups.
Phone: (516) 944-8900
TTY Phone: (516) 944-8637
Fax: (516) 944-7302

National Family Associations for Deaf-Blind (NFADB)

This national organization provides support to families through advocacy, information, resources, referral, supports, national policies, encourages founding and strengthening state family organizations, assists professionals in development of materials and training seminars and publishes “News from Advocates for Deaf-Blind.”
Phone: (601) 388-7578

National Organization of Rare Disorders (NORD)

The National Organization for Rare Disorders (NORD) is a private not-for-profit organization dedicated to helping people with rare disorders and assisting organizations that serve them. NORD functions as a clearinghouse serving public and medical professionals, answering more than 100,000 questions each year. NORD puts families with the same disorders in touch with each others. Articles on over 4,000 rare diseases are available from NORD.
Phone: (800) 999-6673

NTAC

The National Technical Assistance Consortium for Children and Young Adults Who are Deaf-Blind (NTAC) provides technical assistance to families and agencies serving children and young adults who are deaf-blind. NTAC will work with agencies and families within states through the provision of technical assistance to: a) facilitate long-range planning and development of collaborative partnerships among families, service providers, and agencies at the local, state, and regional levels; b) use effective practices and current research findings to enhance training opportunities for families and service providers to increase awareness, knowledge, and skills in meeting the unique needs of children and young adults who are deaf-blind; c) assist parents and family members in advocating for and participating in effective service delivery systems for the family member who is deaf-blind; d) assist young adults who are deaf-blind to promote self-advocacy and self-determination; and e) develop a nationwide database of demographic characteristics of infants through young adults who are deaf-blind.
Phone: (503) 838-8140

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